Local AM encourages people to talk about smear tests and cervical cell changes (Published 12/6/2019)

To mark Cervical Screening Awareness Week (10-16th June), local AM for Aberavon, David Rees has teamed up with charity Jo’s Cervical Cancer Trust, to encourage people to attend their smear test in order to prevent cervical cancer.

 

Around 220,000 women are diagnosed with cell changes (abnormalities) every year in the UK following a smear test. Treatment for cell changes, given to prevent development of cervical cancer, is highly successful and 80% treated will not experience a recurrence[1][2].

 

However, new research by Jo’s Cervical Cancer Trust has found that some women having treatment for cervical cell changes are not being informed about potential side effects. Many are unprepared for impacts such as pelvic pain, bleeding, anxiety and even loss of sex life, with the severity of some far greater than the current literature suggests. High numbers remain fearful of their cancer risk many years after treatment.

The new report ‘Not so simple. The impact of cervical cell changes and treatment’ highlights one in five (20%) of the 1,622 women surveyed said possible impacts of treatment were not explained to them.  There was variation in the number aware of specific side effects. While 86%[3] experienced bleeding or spotting for up to 6 weeks, one in seven (15%) were unaware of this common side effect.  The charity wants to see standardised information about potential side effects.

 

David Rees AM said:  “I am pleased to support Cervical Screening Awareness Week to highlight the importance of cervical screening, a 5 minute test that can prevent cervical cancer.  220,000 women in the UK are diagnosed with cell changes from their smear test every year which can be a confusing and distressing diagnosis.  Jo’s Cervical Cancer Trust have published a useful ‘jargon buster’ to explain what all the terms mean and are calling for more support for those affected.”

 

Rebecca Shoosmith, Head of Support Services, Jo’s Cervical Cancer Trust said: “While treatment for cell changes remains highly effective, we must start to see it as more than just a simple procedure and acknowledge the impact diagnosis and treatment can have on women. There has been lots of focus on the needs of those attending screening, and of those with a cancer diagnosis, but this is a group who have previously been overlooked. Better information provision and support for those having treatment is essential.

 

“While for many women diagnosis and treatment is relatively straightforward, it is clear that for others it is the opposite. The psychological impact can be significant and feeling uninformed will only add to women feeling less able to seek support. While appointment time in colposcopy is limited, there is a clear need for greater discussion about side effects. Other health professionals such as GPs and practice nurses should also take the time to ask questions and ascertain if further support is needed.”

 

Marianne Wood, Nurse Colposcopist said: “This report provides an opportunity for Colposcopists to look at their existing practice and identify where improvements are needed. This includes looking at the written information provided and how much time is dedicated to talking with patients before and after treatment. It is vital that women fully understand what is happening to them and feel able to manage any side effects. We must remember that every woman is different and will need an individualised approach to their treatment.”

Ends

For further comment, interviews or case studies please contact [email protected] or call 020 3096 8000 / 07772 290064

Notes to editors

  • Visit the full report at jostrust.org.uk/notsosimple
  • Cervical Screening Awareness Week runs from 10-16 June and Jo’s Cervical Cancer Trust are focussing on the experiences of women going for cervical screening and those who have had cell changes (abnormal cells). Find out more at jostrust.org.uk/csaw
  • Jo’s Cervical Cancer Trust is the UK’s leading cervical cancer charity. We provide information and support to anyone affected by cervical cancer or cell changes and campaign for excellence in treatment and prevention. Our Helpline is on 0808 802 8000. jostrust.org.uk

 

***ENDS***

[1] Castle PE. et al, Treatment of cervical intraepithelial lesions, International Journal of Gynecology and Obstetrics, 2017.

[2] Lili E. et al, Low recurrence rate of high-grade cervical intraepithelial neoplasia after successful excision and routine colposcopy during follow-up, Medicine, 2018.

[3] Questions regarding experience of side effects used a pool of 784 respondents. 1,622 respondents were used in questions regarding awareness of treatment options and side effects, which included those having, or less than 3 months post, treatment and those who subsequently had a cervical cancer diagnosis.